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Autism Go Bag

What you may need when your child or family member has an autism diagnosis?

Autism Spectrum Disorder (ASD) is a developmental condition which makes social communication, behavior, and daily life challenging. The American Psychiatric Association defines some symptoms of social deficits as decreased sharing of interests with others, difficulty appreciating their own & others' emotions, and aversion to maintaining eye contact potential signs of autism in children. The APA also cites inflexibility of behavior, extreme difficulty coping with change, being overly focused on niche subjects to the exclusion of others, and sensory hypersensitivity as behavioral deficits that could indicate an underlying autism diagnosis. 


What steps should I take if I think my child shows signs of ASD?

  1. Talk to your child' s primary care provider. Your child' s PCP can screen for developmental concerns and recommend you specialists in your area.
  2. Make consultations with specialists to find the right provider for you and your child.
  3. Refer to Early Intervention programs and other resources to get your child an official evaluation. 
  4. If further action is the next step, look for therapy providers that match your needs. Physical, occupational, speech, and language therapy are often beneficial for children on the autism spectrum.
    - Check your insurance coverage.
  5. Look into state support agencies and programs that can cater to your individual wants and needs.

1. For the 16-Year-Olds (NJ Driver’s License/ID Autism Designation):

2. For the 18-Year-Olds (Selective Service Medical Exemption):

 
How to get a "Status Information Letter" (SIL) for your Autistic Child

If your child is 18 and has a disability, you should request a Status Information Letter (SIL). This is the only official way to get a letter from the government stating that the child is not required to serve.

How to do it: You need to put a packet together to mail to the Selective Service. You should include:

  • The Psychologist report or records of therapy sessions.
  • letter from their doctor stating their diagnosis.
  • The Guardianship letter from the court.
  • Optional: If a sibling is a co-guardian, include their Selective Service number as well to show they are a necessary caregiver (this is a "Hardship Deferment").

How to mail it: Send these documents Certified Mail with a Return Receipt (the Green Card you get back from the Post Office is your proof). Once the government reviews the paperwork, they will mail you the official Status Information Letter (SIL). Keep that letter in your safe—it is your permanent proof of exemption.

Where to mail the packet:

Selective Service System ATTN: SIL PO Box 94638 Palatine, IL 60094-4638

 
EXAMPLE:
 
I am writing to request a Status Information Letter (SIL) regarding [Child's Name]’s Selective Service requirement. This letter is needed to officially confirm that he is not required to serve.
 
Please find the following documents enclosed for your review:
 
- Psychologist report and/or therapy session records
- A letter from their doctor confirming their diagnosis
- Guardianship documentation
- Selective Service number for [Individual's Name], who also serves as a guardian

Resources


Go Bag Table of Contents
The Arc of New Jersey Family Institute

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