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Stay Up-to-date On All The Changes Taking Place
The Arc of New Jersey Family Institute provides information about the best way to navigate the service delivery system and its changes. We do this through seminars, workshops, webinars, podcasts, how-to-guides and fact sheets.
Calling all college prospects with intellectual or developmental disabilities, and their families.
The Go Bag was created to help you be the best ADVOCATE you can be for your family. A Go Bag is simply a collection of necessary resources about a specific topic. The topics will vary but the message is the same. Be Prepared!
The role of brothers or sisters in the life of a person with an intellectual and developmental disability (I/DD) is as complex as it is meaningful.
You'd be surprised at how far we can stretch a dollar
Newest Series: Get to Know a Support Coordination Agency
Newest Archived Webinar: Self Advocacy: An Overview for Students, Parents and Teachers
Save the Date and mark your calendar for these upcoming events.
Our Book of the Month Club is a great way to discover and read the best books meant to help support you and and your loved one with an intellectual and developmental disability.
The Arc of New Jersey Family Institute is dedicated to helping families navigate the system of care. This web page was created to help families find the necessary information they need to make managing their child’s journey a little easier. Here you will find a list of support programs and funding by age and an explanation of services.
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Missed an email? Catch up by clicking the picture below.
www.thearcfamilyinstitute.org/resources/dddgobag.html
Trouble Accessing Services?
Are you a self-advocate, caregiver or professional in need of help navigating the system? The Arc of New Jersey Family Institute is here to assist you. Click HERE to submit a Problem Intake Form and let us help you find your way.
Do you shop on Amazon.com? Now those shopping trips can benefit your favorite charitable organization! Log on to www.smile.amazon.com, and chose "The Arc of New Jersey Inc." as your charity of choice and Amazon.com will donate a portion of your purchase price to us, at no extra cost to you.
When a child is facing challenges to their functioning and well-being, finding the right services and support can be overwhelming. We are committed to helping you access the right services for your child. You can use the navigation to the left to find out more about the New Jersey Children’s System of Care and PerformCare. You will also find links below for information specific to your child's challenges.
What is an IEP?
An Individualized Education Plan is a written document that describes the education plan for a student with an intellectual and/or a developmental disability. The IEP is the foundation for a child's education. The IEP lists the special education an individual will receive based upon their needs. It's important that student's and their family members understand what's written in the IEP and that they take an active role in developing this document.
TIP:
Do advance work. Find out which teachers will attend the IEP meeting. If you know that the speech therapist will be there, e-mail questions to her ahead of time. If you prepare well, the meeting time, about an hour in most school districts, can be used more effectively.
https://www.additudemag.com/12-tips-successful-iep-meeting/
We wore our jeans with a purpose to raise money to help support the quality of life for individuals affected by 22q11.2 Syndrome and donated to The International 22q11.2 Foundation Inc.
In honor of Ava Desiderato
Each month The Arc of New Jersey Family Institute spotlights a different developmental disability to help build awareness and educate others about the disability. Learn more below.
http://www.thearcfamilyinstitute.org/spceial-campiangs/home-page-spotlight.html
In June 2018, New Jersey Human Services Commissioner Carole Johnson announced the launch of the NJ ABLE program, which enables individuals with disabilities to save tax-free for eligible expenses such as education, housing and transportation without losing eligibility for Medicaid and other benefits. To learn more about this important new financial tool for individuals with disabilities, please visit the NJ ABLE web page.
A Message from the NJ Department of Human Services Commissioner
Dear Friends,
Since joining the Department of Human Services in January, I have heard concerns from individuals, families, and advocates about the transition from Easterseals NJ to the new fiscal intermediary, Public Partnerships.
We have heard your concern – and the Department will make enrollment with Public Partnerships voluntary during the fiscal year that begins on July 1. Individuals who are self-directing their services may remain with Easterseals NJ or choose to enroll with Public Partnerships. We will continue to explore options to improve these services to best meet the needs of individuals in this program and their caregivers, and will provide additional updates soon.
While you await further updates, if you are enrolled with Easterseals NJ for self-direction and wish to remain enrolled with Easterseals NJ, no action is required and your services and budget will not change.
If you wish to enroll with Public Partnerships, you may contact your Support Coordinator/ Case Manager or the Division of Developmental Disabilities’ Fee-for-Service Helpdesk at DDD.FeeForService@dhs.state.nj.us.
Thank you,
Carole Johnson
Commissioner
This week NPR – National Public Radio - launched a 7 part series on the sexual abuse of adults with I/DD. In this time of heightened awareness about sexual harassment, assault and violence, the plight of a vulnerable population at significant risk - people with I/DD - needs to be discussed, addressed and made a priority. For decades, The Arc of New Jersey has worked to enact policy to protect people with I/DD, and educate the public so that they become our partners in keeping people safe. We have also developed programs for people with I/DD to educate and support them, and reduce their risk of being a victim.
As we continue to raise awareness and work to strengthen the safety net for people with I/DD, we ask you to join us in the effort by staying connected, speaking up and acting as needed. Click here to read more.
Please note that all new graduates born after January 1, 1997, must go through the full DDD intake process—including the completion and submission of the DDD Intake Application and supporting documentation—to ensure eligibility.
Your support for The Arc of New Jersey Family Institute will ensure that this vital program will continue to help the thousands of New Jersey families struggling to care for their loved one with intellectual and developmental disabilities.
Gifts of any amount are urgently needed.... because every gift is a statement - a statement of your commitment to supporting families in need now and for the future.
Each month The Arc of New Jersey Family Institute spotlights a different developmental disability to help build awareness and educate others about the disorder. Click below to learn more about this month's spotlight and resources that are available to help.
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