Webinar: Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals with I/DD
While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double between 2000 and 2030. Furthermore, as policies continue shifting to reflect a preference for home and community-based services as an alternative to institutionalization, adult day services (ADS) have the potential of becoming ideal settings for receipt of end-of-life care, especially for individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings, for the general population, and have historically been less of a priority in ADS and residential services for people with IDD. This presentation discusses findings from a study around the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD. We will also explore how ADS may be a great pathway for delivering end-of-life care to the IDD population and provide guiding recommendations.
Corina R. Ronneberg, MS, is a Doctoral Candidate in Gerontology from the University of Massachusetts Boston. She is also serving as Visiting Senior Research Specialist in the Department of Disability and Human Development at the University of Illinois at Chicago and is the Managing Editor of the Journal of Aging & Social Policy. Corina’s research focuses on older adults, physical and mental health, faith, as well as health promotion for undeserved populations.
Lisa Peters-Beumer is the assistant VP, Adult and Senior Services for Easter Seals where she advances innovative efforts across Easter Seals national network of HCBS providers, such as the development and implementation of core outcome measures, bridging adult day services with end of life care and scaling up an evidence informed models of care.