The Go Bag was created to help you be the best ADVOCATE you can be for your family. A Go Bag is simply a collection of necessary resources about a specific topic. The topics will vary but the message is the same. Be Prepared!
The Arc of New Jersey Family Institute provides information about the best way to navigate the service delivery system and its changes. We do this through seminars, workshops, webinars, podcasts, how-to-guides and fact sheets.
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The role of brothers or sisters in the life of a person with an intellectual and developmental disability (I/DD) is as complex as it is meaningful.
You'd be surprised at how far we can stretch a dollar
Newest Series: Get to Know a Support Coordination Agency
Newest Archived Webinar: Self Advocacy: An Overview for Students, Parents and Teachers
Save the Date and mark your calendar for these upcoming events.
Our Book of the Month Club is a great way to discover and read the best books meant to help support you and and your loved one with an intellectual and developmental disability.
The Arc of New Jersey Family Institute is dedicated to helping families navigate the system of care. This web page was created to help families find the necessary information they need to make managing their child’s journey a little easier. Here you will find a list of support programs and funding by age and an explanation of services.
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Trouble Accessing Services?
Are you a self-advocate, caregiver or professional in need of help navigating the system? The Arc of New Jersey Family Institute is here to assist you. Click HERE to submit a Problem Intake Form and let us help you find your way.
Do you shop on Amazon.com? Now those shopping trips can benefit your favorite charitable organization! Log on to www.smile.amazon.com, and chose "The Arc of New Jersey Inc." as your charity of choice and Amazon.com will donate a portion of your purchase price to us, at no extra cost to you.
When a child is facing challenges to their functioning and well-being, finding the right services and support can be overwhelming. We are committed to helping you access the right services for your child. You can use the navigation to the left to find out more about the New Jersey Children’s System of Care and PerformCare. You will also find links below for information specific to your child's challenges.
What is an IEP?
An Individualized Education Plan is a written document that describes the education plan for a student with an intellectual and/or a developmental disability. The IEP is the foundation for a child's education. The IEP lists the special education an individual will receive based upon their needs. It's important that student's and their family members understand what's written in the IEP and that they take an active role in developing this document.
Create a power- point presentation with your child and present it to the Child Study Team!
We wore our jeans with a purpose to raise money to help support the quality of life for individuals affected by 22q11.2 Syndrome and donated to The International 22q11.2 Foundation Inc.
In honor of Ava Desiderato
Each month The Arc of New Jersey Family Institute spotlights a different developmental disability to help build awareness and educate others about the disability. Learn more below.
The Arc of the U.S. submitted comments today in opposition to the Department of Education's proposed two-year delay of regulations to address significant racial and ethnic disproportionality in Individuals with Disabilities Education Act (IDEA) identification, placement, and discipline. In 2004, the requirement to collect and report data on significant disproportionality, and take certain action if it is found, was added to the IDEA. However, in the 14 years since the law was changed, few states and school districts have reported any such significant disproportionality. This fact was documented in a 2013 U.S. Government Accountability Office (GAO) study showing that most states had set thresholds for identifying disproportionate districts so high that no districts ever exceeded them, and, therefore, none were ever identified or the issues resolved. Following the GAO's recommendation, the Department of Education issued regulations in 2016 that are set to take effect in July of 2018. These regulations provide a standard methodology for determining significant disproportionality, but permit each state to set its own thresholds so long as they are reasonable. See The Arc's comments here. Disability advocates are encouraged to submit their own comments. See shorter sample comments here which can be submitted by clicking here. Comments are due by midnight on Monday, May 14.
To help understand what disproportionality is, how it harms students with disabilities who are students of color, and what advocates can do to ensure equity in education for all children, the National Disability Rights Network has made this short video.
Please check back for updated information about PPL/SDE...
This week NPR – National Public Radio - launched a 7 part series on the sexual abuse of adults with I/DD. In this time of heightened awareness about sexual harassment, assault and violence, the plight of a vulnerable population at significant risk - people with I/DD - needs to be discussed, addressed and made a priority. For decades, The Arc of New Jersey has worked to enact policy to protect people with I/DD, and educate the public so that they become our partners in keeping people safe. We have also developed programs for people with I/DD to educate and support them, and reduce their risk of being a victim.
As we continue to raise awareness and work to strengthen the safety net for people with I/DD, we ask you to join us in the effort by staying connected, speaking up and acting as needed. Click here to read more.
Beginning in 2015, the Division undertook a massive outreach effort to ensure that all individuals receiving or eligible to receive services were notified about the need to complete the new NJ CAT. This included five mailings from January 2015 through August 2016; targeted one-to-one outreach from case managers and support coordinators; and numerous announcements distributed by the Division.
While the NJ CAT has now been completed for the majority of individuals, there remains a small number of individuals who still do not have a completed NJ CAT.
Please note that all new graduates born after January 1, 1997, must go through the full DDD intake process—including the completion and submission of the DDD Intake Application and supporting documentation—to ensure eligibility.
Your support for The Arc of New Jersey Family Institute will ensure that this vital program will continue to help the thousands of New Jersey families struggling to care for their loved one with intellectual and developmental disabilities.
Gifts of any amount are urgently needed.... because every gift is a statement - a statement of your commitment to supporting families in need now and for the future.
Each month The Arc of New Jersey Family Institute spotlights a different developmental disability to help build awareness and educate others about the disorder. Click below to learn more about this month's spotlight and resources that are available to help.
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